USA
GLOBAL AHUS HIGHLIGHTS AND SCIENCE-BASED CONTENT
Are there 3000 aHUS patients in the USA
Health care and better estimating lead us to believe there are approaching 3000 aHUS patients in the USA who have survived…
AHUS patients without kidney involvement- who are they
Diagnosing aHUS patients without kidney involvement has always seemed paradoxical. TMA can affect capillaries in all organs but the “u” in…
Is it time to have aHUS
Anyone who can get aHUS can get it any time. That makes sense the disease is just the product of a…
aHUS and the foetus
There are two involved in a pregnancy and birth the mother and the foetus /baby. The mother may or may not…
Later onset aHUS
We all want aHUS patients to survive to old age, but what about those whose aHUS onset is later in life.…
Informed about aHUS Patient Involvement
Involving patients in clinical studies design and conduct is ethical (Article 575). Involving patients as subjects of that study is ethically…
Before aHUS endeavours fade
There have been moments and events in the past where someone whose endeavours make a significant difference for those who have…
Why aHUS for them not me?
Hey GA tell me why aHUS for them and not me? Oh hi again. Who is them?Some of my family they…
Lessons about aHUS Patient Advocacy
In the past this website featured a series of blogs which covered the story of a patient advocacy organisation in the…
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