aHUS – Stopping eculizumab treatment safely
For aHUS patients stopping eculizumab (or even Ravulizumab) treatment is an important but emotive issue. Having had the treatment when seriously…
Closing the CaHUS knowledge gap
Two days ago an article appeared in BLOOD journal which was the result of a comprehensive analysis of data about patients…
Immunocompromisation- is it aHUS?
Immunocompromisation is a hall mark of aHUS. For those who are predisposed to it and for those who have had it…
Complement inhibitor users it’s World Meningitis Day
It is important that those using complement inhibitors remain alert to meningococcal infection a life threatening side effect of their use.…
What are aHUS people capable of?
About 4000 people around the world have had aHUS since the last aHUS awareness day. Many did not survive, they were…
Just saying it’s aHUS Awareness Day 2023
Yes today 24th September 2023 is another aHUS awareness day, the 9th to date. Ever wonder who is behind this international…
Some aHUS awareness for FDA today
Something different has been tried this year to raise awareness of aHUS. It involved the Food & Drugs Administration , the…
The early days of aHUS Research (Before aHUS Endeavours Fade)
Global Action is privileged to present a second article in the series BEFORE aHUS ENDEAVOURS FADE. Celebrating the work of people…
Numbers about aHUS
The first thing about aHUS numbers is that there is no exact record of global aHUS patients anywhere . But research…
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