A patients perspective of aHUS name change
For the past nine years Global Action has been at the forefront of featuring the aHUS name change journey. Currently proposals…
For the past nine years Global Action has been at the forefront of featuring the aHUS name change journey. Currently proposals…
Last Summer nearly three hundred aHUS people from around the world participated in the 2024 Global Poll. They filled in a…
A few days ago an article appeared in The Lancet which claims to be the largest real world analysis of complement…
The renaming of Primary aHUS is inevitable. The experts have said so and the name change creep, albeit unofficial, is gathering…
The Primary aHUS community now understands that there is no accurate record of how many "aHUS" patients there are , but…
aHUS patients have been deliberately not engaged in the proposal to change the name aHUS into a plethora of thrombotic microangiopathy…
Recently I wrote an article about a clinical study which is an Ravulizumab pregnancy registry in the USA. Then tried to…
What follows is an imagined "dinner party conversation" about atypical hemolytic uremic syndrome (aHUS) among aHUS pioneers—Professor Conrad von Gasser, Professor…
An unusual aHUS trial study ( No.NCT06312644) has begun which involves mothers with aHUS and their babies. The official title of…