AHUS alliance four years on from Barcelona
On 16 February 2013 representatives from six European aHUS patient organisations met in Barcelona and decided to create an aHUS alliance…
A Rare One – aHUS Certainly is! But you are not alone…
Here is one from the archives. A song specially written for Rare Disease Day 2012 as part of aHUS community contribution…
(archived 2019) -aHUS Alliance – Press Kit
Patients sharing their rare disease journey help bring new levels of understanding to researchers, industry, and the general public. Whether…
New Alliance Logo
When the aHUS Alliance was formed, a logo was designed and used. Over the months however, the need was felt to make…
The problem of aHUS in South Africa
Despite all its history South Africa is still classified by the UN as a developing nation. By 2015 it had the…
Images for Rare Disease Day
Below are some aHUS Alliance images for Rare Disease Day, please visit our social media for a comprehensive array of current graphics.
aHUS & Pregnancy: Questions, Concerns, and Research
UPDATED April 2019: New Research View the video about aHUS & Pregnancy Dr Craig Gordon on the topic of Pregnancy…
An aHUS legacy for Rare Disease Day 2017
On the 28th of this month it will be the tenth annual Rare Disease Day. Rare Disease Day began in 2007…
SHUa en France
Un article sur la SHUa en France figure dans le dernier exemplaire de Nephrogene - le magazine d'AIRG-FRANCE. Écrit par Prof.…
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