RISK OF WITHDRAWAL OF ECULIZUMAB
In the current aHUS related trials list reported on recently, there were two which were looking at the safe withdrawal of…
aHUS Trials Watch
The aHUS trial scene is very active but aHUS patients are often unaware of what is happening. The aHUS alliance will…
aHUS alliance website one year on
The aHUS alliance website has reached its first anniversary. Although some of the first blogs have dates preceding 28 May 2016…
Skin & Atypical HUS: Thrombotic Microangiopathy in aHUS
Skin involvement and thrombotic microangipathy: a consideration for atypical HUS patient care.
Rare Disease Day Video 2017 Reprise
The Rare Disease Day video provided an opportunity for aHUS patients around the world to voice what aHUS research was needed…
aHUS Patient Care – the Need for Multidisciplinary Collaboration
Patients make appointments to see their primary care physician when a health issue arises, but often more complex cases merit…
aHUS Awareness Day: 24 September 2017
The aHUS Alliance, an international group of atypical HUS patient organizations and global advocates, announces its 3rd annual worldwide aHUS…
Perspectives in aHUS – Creating Opportunities & Meeting Challenges – Kamal D. Shah of India
Atypical HUS - Perspectives: An ongoing series from the aHUS Alliance that features varied views, people, advocacy, organizations, or efforts that can provide deeper understanding and insights into this rare disease.
Potty training and aHUS
A previous blog on this website addressed questions about child development and aHUS that arose from the Rare Disease Day video.…
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