aHUS patients and the feeling of fatigue
There were several questions in the Rare Disease Day video about how aHUS patients feel after recovery from aHUS ( click…
How Do You Define Wellness if You’re Living with a Rare Disease or Chronic Illness?
What does the term ‘wellness’ mean if you’re a patient with a very rare disease or chronic illness? At…
The B of the aHUS Bang ends the Rare Disease Day Video
Rares of Romania asked the question " How can I understand in simple words what is happening in my body during this…
Thrombotic Microangiopathy Symposium in Boston – 24 Aug 2017
Thrombotic Microangiopathy Symposium: Through the Lens of aHUS 24 August 2017 in Boston Post-Event Update: LIVE BLOG: At…
Complement over and under Complementing
One of the simplest and clearest overview images to illustrate the Complement system is provided by an organisation called Euro Diagnostica…
aHUS Perspectives – an Interview with Dr Gianluigi Ardissino
The aHUS Alliance presents an informal interview with Dr. Gianluigi Ardissino, a clinician and researcher affiliated with Centro SEU in Milan, Italy, with insight into the interface of HUS and aHUS.
Health IT in the Exam Room
A doctor’s waiting area and exam rooms today look much like they appeared in the 1950s. Patients used to sit in…
Why is Complement “Complement” ?
It is nearly 102 years since the death of Paul Ehrlich."So what? " you might say. But it was Ehrlich who…
Thinking aHUS gets there in the end
Like many with rare diseases getting a diagnosis is a major issue for aHUS patients. Although it is much speedier than…
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