ESKD 2018 Global Health Summit in UAE
Mr Kamal D. Shah, founder of Atypical HUS India and co-founder of India’s largest network of dialysis clinics, was…
Dr Ralf Reski on Moss-Made Biopharmaceuticals: aHUS Alliance Interview
The aHUS Alliance recently conducted an interview with Dr Ralf Reski, a professor and researcher in the field of…
Atypical HUS: Symptoms can be Perplexing
People living with the rare disease atypical hemolytic uremic syndrome (atypical HUS or aHUS) face many challenges, including the…
ERKNET and aHUS
An anniversary passed just over a week or so on Rare Disease Day, with very little awareness in the aHUS /Renal…
aHUS Rare Disease Day 2018 Cohort – Report 2
In the first report on the aHUS Rare Diseases Day 2018 Cohort, ( click here) it was found that the participants…
aHUS Trials Watch 5
An update on STOPECU ( NCT02574403) -the French Study of the withdrawal from eculizumab treatment which began in late 2015. ( click…
aHUS Rare Disease Day 2018 Cohort- Report 1
Rare Disease Day 2018 had the theme of research. As its contribution to Rare Disease awareness this year , the aHUS…
The Many Faces of Atypical HUS: Rare Disease Day 2018
What happens after the world annually marks Rare Disease Day on the last day of February? We carry on…
Creating Your Advocacy Footprint in the Rare Disease Arena
What does the term ‘rare disease advocacy’ mean to you? Patients and caregivers speaking up on social media or…
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