aHUS Registry Update
In an update about the aHUS Registry earlier this year the alliance reported that Alexion had cut back its investment in…
Now where is my tutu?
(* Part 1 and Part 2 click here) Now where is my tutu? With the family moto “Non Offeres” ( “Never…
Where the heck did that come from?
Len Woodward was a founding Trustee of aHUSUK and a founding affiliate of the aHUS Alliance. He is also a Director…
South African Pediatric Nephrology: Global Panel Proposed for aHUS Drug Access
Dr Errol Gottlich and Professor Mignon McCulloch Resilience, fortitude and determination. These characteristics describe the South African doctor treating patients within a complex and changing…
A change in gear for a Reluctant Advocate
In this series of blogs Len Woodward explains and describes how he became an aHUS advocate and where the journey has…
aHUS Expert Centres never heard of them.
Everything that the aHUS alliance does and writes about relates to the "Rare Disease 6". The Rare Disease 6 are the…
aHUS and TMA Study Centers
aHUS and TMA Study Centers An International List Compiled by the aHUS Alliance Atypical HUS is difficult…
Website for aHUS that connects informs and collaborates
This version of the aHUS alliance website has been running for nearly 2 years ( there was a temporary one which…
Someone has to be the first
Twenty years ago today, in 1998, an article appeared in Kidney International , the Journal of the International Society of Nephrology…
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