A pillar of aHUS hope
Article No. 438 1 June 2021 One of six pillars of hope for those with a rare disease, is having a…
FRANCE
SHUA - SYNDROME HÉMOLYTIQUE ET URÉMIQUE ATYPIQUE FRANCE
Eculizumab aHUS treatment: PESaM
Article No. 436 21 May 2021 It is amazing sometimes what you can find on the internet when searching for…
UNITED ARAB EMIRATES
England recommends Ravulizumab for aHUS
Article No. 435 20 May 2021 There is a saying that "you can wait ages for a London bus but then…
Scotland Approves Ravulizumab for aHUS
Article No. 434 10 May 2021 The Scottish Medicines Consortium (SMC) has approved the use of Ravulizumab for treating aHUS in…
aHUS-Interpretation is Complex
Article No. 433 9 May 2021 Each day there are tweets about aHUS on Twitter. Mostly clinicians informing clinicians about new…
aHUS Trial Watch 12 (crovalimab update)
Article No. 432 7 May 2021 In the past week or so, the possible trial of a new technology for treating…
When good Complement goes aHUS bad
Article 430 2 May 2021 OK so HUS is caused by e.coli and aHUS results from Complement dysregulation. Both are…
Direct action – aHUS research
Article No. 429 23 April 2021 The aHUS alliance reputation for its 360 degree view of the rare disease aHUS continues…
UNITED KINGDOM
CTMA UK
Rare disease patients becoming rarer in the USA.
Article No. 427 15 April 2021 It is not surprising that people are confused by rare disease definitions and terms, the…