How are you doing? (1)- Patient Reported Outcomes
Article No 326 5 March 2020 Medical research depends a lot on the collection of clinical data about patients from blood…
A global patient vision for aHUS?
Article No. 325 29 February 2020 20/20 vision is about clarity of sight. Perfect vision. It’s a measure and is not…
Rare in 1.4 billion people
Article No 324 26 February 2020 Like many medical institutions around the world this week The Lancet (Haematology) ,an offshoot of…
Spotlight on Ravulizumab 5- Affordable?
Article No 323 23 February 2020 Although precautions are needed in its use, there is evidence that Ravulizumab, like its predecessor…
aHUS genetics- the basics
Article No. 322 21 February 2020 One thing is plainly clear, for most people genetics is a difficult and complex science.…
aHUS- some do some don’t
Article No. 321 20 February 2020 Recalling a couple of questions in the 2017 Rare Diseases Day video about something that…
Spotlight on Ravulizumab 4- side effects
Article No. 320 19 February 2020 Continuing in the series of news blogs about Ravulizumab, which so far has covered…
The study of genetics and aHUS
Article No. 319 14 February 2020 The study of genetics really began over 150 years ago when an Augustine Monk called…
aHUS trials watch 9
Article No. 318 13 February 2020 The alliance has reported on the development of OMS721 made by Omeros before. It is…
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