aHUS patients on Ravulizumab- we need your help.
Article No. 365 3 August 2020 Please note the study is now complete and that no further contributions are being sought.…
Article No. 365 3 August 2020 Please note the study is now complete and that no further contributions are being sought.…
Article No 364 2 August 2020 Genetics is very important to aHUS patients. aHUS is a very rare genetic diseases. aHUS…
Article No. 363 28 July 2020 aHUS Global Action last reported on the ERKNet Registry in January this year ( see…
Article No. 362 27 July 2020 Ask Google " how many aHUS patients are there in the USA?" and you will…
Article No. 361 24 July 2020 The world’s 6th annual aHUS Awareness Day, to be held on Thursday 24 September…
Article No 360 22 July 2020 Whilst aHUS patients increasingly wonder whether It is possible to withdraw from eculizumab/Ravulizumab treatment, many…
Article No: 357 20 July 2020 aHUS alliance Global Action is launching a newsletter. ( See link below). Why? From its…
Article No.356 17 July 2020 Two recent website articles delved into the data provided in an article by the Alexion aHUS…
Article No. 355 13 July 2020 Among the the topics included in the Global aHUS Patients' Research Agenda are the following…