Images for world aHUS Awareness Day, in multiple languages. aHUS Awareness Day was created in 2015 by the aHUS Alliance and recognized annually on 24 September to rare awareness about this very rare disease.
The global aHUS Alliance, an affiliation of aHUS patient organizations from around the world, is encouraging all individuals, groups, and organizations to…
The aHUS Alliance, an umbrella group of 15 nations with aHUS patient groups, launched a worldwide poll of aHUS patients and…
One of the best ways to keep up to date with clinical trials relating to complement inhibitors and aHUS is to…
Earlier this week EURORDIS issued a press release calling on Europe's health payers and suppliers to agree europe-wide prices for orphan…
WELCOME This is where the aHUS alliance will connect, inform and collaborate with the Global aHUS community for the benefit of all…
Although the 2016 aHUS Survey is now closed some of the results of the survey are now being released but the…
The aHUS alliance is made up of affiliated aHUS organisations from around the world, which are in constant contact, and collaboration,…
In the 2016 aHUS Global Survey , aHUS patients and families gave their views on some aHUS Research and Registry issues.…