Where we are up to on aHUS diagnosis and treatment
As 2016 comes to a close, the output from the 2015 KDIGO Controversy Conference about aHUS and C3G ( MPGN &…
There is more to aHUS than kidney disease
An onset of aHUS although predominantly associated with kidney failure, as the "U" for Uraemic relates, the Haemolytic activity also causes…
aHUS Voice from India supports UN NGO for Rare Disease Action
The United Nations has created a Non Government Organisation Committee for Rare Disease and held its inaugural meeting in November which…
What sort of complotype am I?
aHUS alliance was recently represented by its UK affiliate at a major conference in the UK about Complement. At the Complement…
PUBLICATION REVEALS FIRST aHUS PATIENTS RESEARCH AGENDA
An article entitled "An innovative and collaborative partnership between patients with rare disease and industry-supported registries: the Global aHUS Registry" has appeared in the Orphanet Journal…
Closing the aHUS knowledge gap a bit more
A key outcome from conferences like Kidney Week in Chicago ( American Society of Nephrologists.) is the sharing of knowledge from…
THINK KIDNEY THINK AKI THINK TMA THINK aHUS
The American Society of Nephrologists meeting is due to be held on 15 to 20th of November in Chicago. aHUS alliance…
Rare Disease Caregivers
Some countries use the term ‘carer’, while other nations prefer the word ‘caregiver’ to describe those individuals who fill the…
Lab-Grown Kidneys: Are we there yet?
Current options for kidney failure quite onerous for patients Survival rates not good enough with these treatments Newer options like WAK…