aHUS alliance website one year on
The aHUS alliance website has reached its first anniversary. Although some of the first blogs have dates preceding 28 May 2016…
Skin & Atypical HUS: Thrombotic Microangiopathy in aHUS
Skin involvement and thrombotic microangipathy: a consideration for atypical HUS patient care.
Rare Disease Day Video 2017 Reprise
The Rare Disease Day video provided an opportunity for aHUS patients around the world to voice what aHUS research was needed…
aHUS Patient Care – the Need for Multidisciplinary Collaboration
Patients make appointments to see their primary care physician when a health issue arises, but often more complex cases merit…
aHUS Awareness Day: 24 September 2017
The aHUS Alliance, an international group of atypical HUS patient organizations and global advocates, announces its 3rd annual worldwide aHUS…
Perspectives in aHUS – Creating Opportunities & Meeting Challenges – Kamal D. Shah of India
Atypical HUS - Perspectives: An ongoing series from the aHUS Alliance that features varied views, people, advocacy, organizations, or efforts that can provide deeper understanding and insights into this rare disease.
Potty training and aHUS
A previous blog on this website addressed questions about child development and aHUS that arose from the Rare Disease Day video.…
Brain Fog and Kidney Disease?
Brain Fog - Patients with Chronic Kidney Disease may experience memory issues, lack of ability to focus, and a general feeling of confusion or lack of mental clarity. Info & Research on this topic, from the aHUS Alliance.
Genetic tests – to know or not?
Genetics is very important to aHUS patients. aHUS is a very rare genetic diseases. aHUS patients get to know and understand…
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