aHUS Patients have a value beyond the balance sheet
It was little known, but Alexion decided years ago that it would reinvest 40% of any of its profits from the…
It was little known, but Alexion decided years ago that it would reinvest 40% of any of its profits from the…
Everyone gets ill at some time don't they? Whether it is for example a cold, stomach upset or measles, people know…
The Last in the aHUS Alliance Four Part Series Patients Included: Reality or Unmet Goal? 4 MYTHS of Rare…
4 MYTHS of Rare Disease Advocacy: Digging deeper into Common Misperceptions Pathways of Patient Engagement & Recruitment…
Following aHUS India's response came two replies from The Netherlands and UK in Europe. Their expectations reflect a very different position…
The alliance has asked all the affiliated aHUS organisations and groups to provide their thoughts on what they expect to happen…
1 January 2018 Dear Alexion As you know aHUS is a life threatening and debilitating condition. You have the only treatment…
Adding value in patient advocacy is obvious. Or is it? Those involved in patient advocacy constantly ask themselves “Am I achieving…
The SECOND Article in a Four Part Series Rare Disease Advocacy: Digging deeper into Common Misperceptions Although there…