Milan -The Final Stop but not the Full Stop
The alliance reached its final stop on its Whistle Stop tour of four aHUS Expert Centres in Europe. In…
Third Stop Bergamo Italy and another aHUS Expert Centre
Bergamo IT - Whistle-Stop Tour of 4 aHUS Centers in the EU: Visits to Three Nations in 6 days. The aHUS Alliance toured centers of aHUS expertise and research in July 2018. 3rd Stop: Mario Negri Institute, the Centro di Ricerche Cliniche per le Malattie Rare "Aldo e Cele Daccò"
Next stop Newcastle upon Tyne Hospital
Newcastle upon Tyne UK - Whistle-Stop Tour of 4 aHUS Centers in the EU: Visits to Three Nations in 6 days. The aHUS Alliance toured centers of aHUS expertise and research in July 2018. 2nd Stop: England, the National Renal Complement Therapeutics Centre (NRCTC) and with the National aHUS Service (NHS).
Whistle-stop Tour Begins
Paris FR - Whistle-Stop Tour of 4 aHUS Centers in the EU: Visits to Three Nations in 6 days. The aHUS Alliance toured centers of aHUS expertise and research in July 2018. 1st Stop: the Complement Diagnostics Laboratory led by Dr Veronique Fremeaux- Bacchi (HEGP).
Atypical HUS 1.0
What is atypical HUS? How is aHUS diagnosed and treated? Providing a quick start to begin learning about the rare disease atypical hemolytic uremic syndrome, Atypical HUS 1.0 offers a list of key assets as your initial set of aHUS resources & info.
A whistle stop tour of aHUS Expert Centres
Whistle-Stop Tour of 4 aHUS Centers in the EU: Visits to Three Nations in 6 days. "What is a Centre of Excellence?" lacks clarity, and is a concern of patients, families, and advocates. On behalf of atypical HUS advocates, the aHUS Alliance toured EU centers of aHUS expertise and research in July 2018.
aHUS Registry Update
In an update about the aHUS Registry earlier this year the alliance reported that Alexion had cut back its investment in…
Now where is my tutu?
(* Part 1 and Part 2 click here) Now where is my tutu? With the family moto “Non Offeres” ( “Never…
Where the heck did that come from?
Len Woodward was a founding Trustee of aHUSUK and a founding affiliate of the aHUS Alliance. He is also a Director…
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