Nashville singer & songwriter Cameron James talks with the aHUS Alliance about finding a new rhythm for her life after her daughter and husband both were diagnosed with the rare disease atypical hemolytic uremic syndrome (atypical HUS or aHUS).
Most of the aHUS community are aware that aHUS is the result of predisposing genetic factors ,some known some not yet…
Last summer an aHUS awareness article appeared in the magazine of the charity Kidney Research UK. ( see article here). Ostensibly…
I set out in this series of blogs to not only tell the tale of a Reluctant Advocate , but also…
The reluctant advocate story nears its end aHUSUK had been created to support existing aHUS patients and those in the future…
More from the Reluctant Advocate. International collaboration was beginning to pick up considerably after the 2015 London meeting of affiliates. At…
CardioRenal Syndrome: The Relationship between Heart & Kidney Function. Cardiorenal syndrome describes the group of medical characteristics (syndrome) which coexist between heart (cardio) and kidney function (renal). When either the kidneys or heart are not fulfilling their vital tasks, there can be a harmful and two-way interaction where decline in one of these major organs can seriously undermine function of the other. Does current patient education include these key points about CRS?
aHUS is a disease in which oxygen carrying red blood cells are destroyed along with the kidneys too. The latter plays…
More about the Reluctant Advocate. The alliance had agreed to have the First aHUS Awareness Day on 24th September 2015. The…