aHUS alliance collaborates -the website starts
More from the Reluctant Advocate. International collaboration was beginning to pick up considerably after the 2015 London meeting of affiliates. At…
More from the Reluctant Advocate. International collaboration was beginning to pick up considerably after the 2015 London meeting of affiliates. At…
CardioRenal Syndrome: The Relationship between Heart & Kidney Function. Cardiorenal syndrome describes the group of medical characteristics (syndrome) which coexist between heart (cardio) and kidney function (renal). When either the kidneys or heart are not fulfilling their vital tasks, there can be a harmful and two-way interaction where decline in one of these major organs can seriously undermine function of the other. Does current patient education include these key points about CRS?
aHUS is a disease in which oxygen carrying red blood cells are destroyed along with the kidneys too. The latter plays…
More about the Reluctant Advocate. The alliance had agreed to have the First aHUS Awareness Day on 24th September 2015. The…
The third aHUS alliance affiliates meeting was held on 28 June 2015 , the day after the second UK aHUS…
The journey of the Reluctant Advocate moves along in 2015. Just after the Paris meeting of the alliance I was contacted…
Along with the simple messages "you are not alone" and "we can find a way" on Rare Disease Day 2019 The Global aHUS…
Another chapter from the Reluctant Advocate From its beginning aHUSUK had not been a fundraiser. We had always told people who…
A big step in the Reluctant Advocate's journey. As previously pointed out aHUSUK outreach was extending due in the main to…