aHUS Expert Centre- what makes it so
Article No. 301 5 December 2019 Within the six pillars of support for those with rare diseases is a…
aHUS is its end really nigh? (2)
Article No 300 4 December 2019 In Part 1 the 95 year journey for aHUS to become in common use…
aHUS is its end really nigh? (Part 1)
Article No. 299 1 December 2019 Currently some challenge is taking place on the terms used to describe diseases in which…
aHUS Patient Centricity
Article No. 298 18 November 2019 A change is coming in the relationship between patients/ patient organisations and Pharma. This change…
Where and what next?
Article No. 297 15 November 2019 There is a saying in “management theory” that in the development of a…
What do you call it?
Article No. 296 13 November 2019 A while back, a blog was published on this website titled “A rose by…
Difference In differences
Article No. 295 9 November 2019 Genetics are important when it comes to aHUS. Yet genetics does not feature in the…
ASN, aHUS and the sisters from Missouri
Kidney Week 2019 is currently in progress. The American Society of Nephrology’s annual event is being held in Washington DC and…
aHUS genetic counselling-evidence based
Some new aHUS Research* was presented at the recent meeting of the International Pediatric Nephrology Association in Venice. A talk by…
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