Some new ERKNet News
Article No. 310 16 January 2020 The alliance has featured ERKNet in several news articles in recent years. ( Note :…
Not the one and only in 2020
Article No. 309 10 January 2020 At the end of next month it will be Rare Disease Day 2020. ”So what!?”…
Transitioning Teens to Adult Nephrology Care
As children with kidney disease grow to become adolescents, their medical care often changes from a pediatric to adult nephrology care setting - what common issues for teen patients surround this transition? A look at social, emotional, and medical aspects.
aHUS project for Rare Disease Day 2020
Atypical HUS: 2020 Rare Disease Day project by the aHUS Alliance. What do aHUS patients & family caregivers ‘see’ as needs for improvement or envision as future advancements for aHUS through 2020?
2019 more answers to questions
Article No 306 20 December 2019 If you have genetic mutations in your Complement and/or in related components in your blood…
Jules Bordet’s “Alexine”
Article No. 305 18 December 2019 Before 2019 comes to a close the opportunity is taken to acknowledge the work…
An aHUS tale from Slovakia
Article No. 304 12 December 2019 The alliance received a copy of an aHUS story from Slovakia. There are are unlikely…
aHUS is its end really nigh? (3)
Article No. 303 11 December 2019 It has taken nearly a century for aHUS nomenclature to reach the level acceptance, application…
Rare Disease Day: Atypical HUS in 2020
Article No. 302 7 December 2019 Rare Disease Day Looking Ahead: What Atypical HUS Community Sees for 2020 …
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