Really, isn’t everyone aware of aHUS by now?
Look at any charity/ not for profit organisation related to health and the term “awareness” will be there in what they…
Look at any charity/ not for profit organisation related to health and the term “awareness” will be there in what they…
After reading an inspirational article* about Kamal Shah , which featured on the alliance’s social media recently, I was reminded about…
aHUS is known as a family illness. It was seen as something different from HUS when different family members experienced it…
The alliance has frequently featured articles about kidney transplants for those with aHUS. It was its top topic identified as a…
The alliance relationship with the atypical Hemolytic-Uremic Syndrome( aHUS) Registry (NCT01522183) is now well into its fifth year. This observational non…
Following on from its recent article about the safety of eculizumab ( see here ) the alliance has looked at two…
Within the aHUS Patients' Research Agenda is a topic about how aHUS affects work and school. A big question with so…
2019 aHUS Awareness Day - Atypical HUS families around the world are invited to participate in this aHUS Alliance outreach & advocacy project for 24 September. Slideshow project details for patients and caregivers affected by the rare disease aHUS.
A new definition of Health: "Health as the ability to adapt and self-manage, in light of the physical, emotional and social…