aHUS Registry: SAB Summary for Dec 2019
Article No. 337 2 April 2020 When news about the rare disease ‘atypical hemolytic uremic syndrome’ (atypical HUS) appears in medical…
Atypical HUS & COVID-19
Article No 336 30 March 2020 Atypical HUS & COVID-19 Resources for the global aHUS Community The aHUS…
Atypical HUS: What are you Waiting for?
Learning that you or a loved one have been diagnosed with a rare disease like atypical HUS is devastating. Imagine the…
aHUS & COVID-19: WEBINAR 24 March 2020
Article No. 334 21 March 2020 The aHUS Alliance wishes to alert atypical HUS patients and family caregivers to the…
aHUS and COVID-19
Article No. 333 18 March 2020 The reaction to aHUS Global Action’s two blogs about aHUS and COVID-19 has been truly…
They “get it ” when they can get it.
Article No. 332 14 March 2020 At the present incidence levels reported worldwide, Coronavirus 2019 (COVID-19) still fits definition of a…
aHUS TRIALS WATCH 10
Article No. 331 8 March 2020 During his talk about potential complement inhibitors, Dr Richard Smith mentioned a ClinicalTrials.gov clinical trial…
That aHUS transplant question
Article No. 330 8 March 2020 Although it is becoming less of an issue for many these days because the…
How are you doing?(4)-PRO data in use
Article No. 329 5 March 2020 In the previous parts of this series "How are you doing?" the importance of PRO…
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