Access to eculizumab
Article No. 375 6 September 2020 Earlier this year, aHUS alliance Global Action wrote to a number of contacts it has…
The aHUS diagnosis challenge
Article No. 374 3 September 2020 For most aHUS patients a diagnosis of aHUS was hard to come by. For a…
Attaining aHUS wellness and well being
Article No 373 2 September 2020 The theme for aHUS awareness day this year is wellness and well-being. Two words which…
Think aHUS 60k this coming awareness day
Article No. 372 1 September 2020 One thing is certain, no one knows how many aHUS patients there are in the…
Your donation support means a lot.
Article No 371 24 August 2020 Click on image above to go to our PayPal Giving page to make a…
Like an Agatha Christie Story!
Article No. 370 13 August 2020 Early this year, soon after it had completed its Rare Disease Day activities and COVID…
Again, just how many aHUS patients are there?
Article No. 369 12 August 2020 Recently when preparing an article about USA aHUS patient numbers ( see Article 362 )…
It’s not about My Rare Disease
Support for rare disease patients and their families - what does that look like, and how does it address their needs? The aHUS Alliance looks behind the medical issues of living with a rare disease to focus on the many factors involved with the struggle to live a meaningful life centered on wellness.
aHUS Day 2020: Global Video Project
Article No. 367 8 August 2020 aHUS Awareness Day 2020 is less than 2 months away! The world will join together…
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