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Article No. 370 13 August 2020 Early this year, soon after it had completed its Rare Disease Day activities and COVID…
Article No. 370 13 August 2020 Early this year, soon after it had completed its Rare Disease Day activities and COVID…
Article No. 369 12 August 2020 Recently when preparing an article about USA aHUS patient numbers ( see Article 362 )…
Support for rare disease patients and their families - what does that look like, and how does it address their needs? The aHUS Alliance looks behind the medical issues of living with a rare disease to focus on the many factors involved with the struggle to live a meaningful life centered on wellness.
Article No. 367 8 August 2020 aHUS Awareness Day 2020 is less than 2 months away! The world will join together…
Article No 366 4 August 2020 An aHUS ROW (Rest of the World) update : Spotlight on aHUS Norway …
Article No. 365 3 August 2020 Please note the study is now complete and that no further contributions are being sought.…
Article No 364 2 August 2020 Genetics is very important to aHUS patients. aHUS is a very rare genetic diseases. aHUS…
Article No. 363 28 July 2020 aHUS Global Action last reported on the ERKNet Registry in January this year ( see…
Article No. 362 27 July 2020 Ask Google " how many aHUS patients are there in the USA?" and you will…