aHUS Relapse: The Ties that Bind
Atypical HUS Relapse -The Ties that Bind, the third in our original series about aHUS as a lifelong challenge faced by families with a history of this rare disease.
Update: aHUS Diagnosis Process Study
Article No. 421 1 March 2021 There is no doubt that with the response by the aHUS Patient community to the…
aHUS Relapse: Expect the Unexpected
Atypical HUS Relapse: A Family View. Second in a 3-part series about how one family experienced the challenges of having this rare disease recur after many years 'off treatment.
Being An aHUS Trialist
Article No. 419 16 February 2021 It is spring time in 2017. You feel very unwell, very poorly. It is thought…
Atypical HUS Relapse – A Family View
Article No. 418 9 February 2021 Our family has been through life-threatening episodes of atypical HUS before, so you’d think that…
Evidence helps aHUS eculizumab access
Article No 416 2 February 2021 Vergoeding eculizumab verlengd tot eind 2025 In March 2016 the Appraisal Committee (ACP) of the…
aHUS Trials Watch 11 ( Crovalimab)
Article No. 415 1 February 2021 In a recent article (article413) about research into why specifically monoclonal antibodies (mAb) work when…
Follow up on aHUS/COVID19 JAbs Follow Up
Article No. 414 28 January 2021 A further update on the issue of aHUS and COVID 19 vaccinations from the author’s…
BB5.1 aHUS connection to c.3643C>G; p. Arg1215Gly
Article No 413 23 January 2021 Very few people have heard of BB5.1 nor even c.3643C>G; p. Arg1215Gly. Yet both are of…
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