When good Complement goes aHUS bad
Article 430 2 May 2021 OK so HUS is caused by e.coli and aHUS results from Complement dysregulation. Both are…
Direct action – aHUS research
Article No. 429 23 April 2021 The aHUS alliance reputation for its 360 degree view of the rare disease aHUS continues…
Atypical HUS & the Teen Years
Families with teenagers diagnosed with the life-threatening & rare disease atypical HUS deal with more than the usual host of everyday tangles regarding issues involving school, personal development, friendships, and activities.
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Rare disease patients becoming rarer in the USA.
Article No. 427 15 April 2021 It is not surprising that people are confused by rare disease definitions and terms, the…
Charmed Moments
Atypical HUS families may not live ‘charmed lives’ - but those affected by this rare disease can deliberately choose to create small ‘Charmed Moments’ each day. Given the uncertainties aHUS brings to our patients and their families, a look at cultivating actions and selecting choices to react to life’s circumstances and aHUS realities.
Experiencing aHUS – Viewpoints & Variations
Article No. 425 30 March 2021 Dealing with the rare disease atypical HUS is difficult, for both patients and for those…
aHUS and COVID 19 Vaccine Update Update
Article No. 424 19 March 2021 COVID 19 vaccine supplies are being hampered around the world because of uncertainty about a…
aHUS uncertainty is a certainty
Article No. 423 16 March 2021 Update: Seven days after this news blog was published a further report on the ravulizumab…
aHUS Relapse: The Ties that Bind
Atypical HUS Relapse -The Ties that Bind, the third in our original series about aHUS as a lifelong challenge faced by families with a history of this rare disease.
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