Ravulizumab is not quite eculizumab
Ravulizumab is becoming a treatment of choice for aHUS in countries where access is funded. Though eculizumab will still have a…
Ravulizumab is becoming a treatment of choice for aHUS in countries where access is funded. Though eculizumab will still have a…
Update news on switching process. aHUS alliance Global Action were not aware of a prior step in the switching process to…
In Article 462 notice was given of a study to help USA rare disease patients in general. and aHUS patients in…
Access to treatment for aHUS is a global issue. Many patients find themselves in countries where their health providers will not…
The topic of pregnancy and aHUS is included in the Global aHUS Patients’ Research Agenda. It has featured in articles on…
There have been several articles about aHUS Patient Registries on this website over the years. Patient Registries are an important part…
The first report on what 227 aHUS patients from around the world told us about their aHUS diagnosis experience and their…
Research has shown that around 2 million tweets are made on Twitter each day. They are shared by around 600 thousand…
aHUS Awareness Day 2021 - Answers to FAQs Finding information about any rare disease is challenging, and perhaps more so for…