What became of the aHUS 130?
Article No. 446 14 July 2021 Eculizumab effectiveness and safety in the treatment of aHUS was established in five clinical trials…
aHUS Trials Watch 12a (crovalimab)
Article No. 445 13 July 2021 Hoffmann Roche has announced its pediatric trial of crovalimab for aHUS. It is featured on…
COVID 19 triggers aHUS
Article No. 444 12 July 2021 Not unexpectedly, as aHUS Global Action had postulated it in March last year, a COVID…
24 Sept 2021 – aHUS Awareness Day
The 7th annual aHUS Awareness Day will be marked on 24 September 2021. Created by the aHUS Alliance in 2015 to raise awareness about this life-threatening rare disease, the theme for this year's aHUS Day is 'United in Advocacy'. Details the 2021 global campaign to raising awareness of atypical HUS.
Evaluating ravulizumab for aHUS treatment
Article No. 442 23 June 2021 Today NICE ( The National Institute for Health and Care Excellence) concluded its evaluation of…
Decision Process: Discontinuing aHUS Treatment
Article No 441 18 June 2021 What topics and questions are likely to frame conversations about treating patients who…
Questioning seldom heard aHUS answers
Article No. 440 11 June 2021 Sometimes aHUS alliances Global Action sees things written about aHUS on the internet which are …
aHUS webinar by Marina Noris
Article No. 438 6 June 2021 Marina ( left ) with some of the team in Bergamo Another ERKNet…
A pillar of aHUS hope
Article No. 438 1 June 2021 One of six pillars of hope for those with a rare disease, is having a…
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