Experiencing aHUS – Viewpoints & Variations
Article No. 425 30 March 2021 Dealing with the rare disease atypical HUS is difficult, for both patients and for those…
Article No. 425 30 March 2021 Dealing with the rare disease atypical HUS is difficult, for both patients and for those…
Article No. 424 19 March 2021 COVID 19 vaccine supplies are being hampered around the world because of uncertainty about a…
Article No. 423 16 March 2021 Update: Seven days after this news blog was published a further report on the ravulizumab…
Atypical HUS Relapse -The Ties that Bind, the third in our original series about aHUS as a lifelong challenge faced by families with a history of this rare disease.
Article No. 421 1 March 2021 There is no doubt that with the response by the aHUS Patient community to the…
Atypical HUS Relapse: A Family View. Second in a 3-part series about how one family experienced the challenges of having this rare disease recur after many years 'off treatment.
Article No. 419 16 February 2021 It is spring time in 2017. You feel very unwell, very poorly. It is thought…
Article No. 418 9 February 2021 Our family has been through life-threatening episodes of atypical HUS before, so you’d think that…
Article No 416 2 February 2021 Vergoeding eculizumab verlengd tot eind 2025 In March 2016 the Appraisal Committee (ACP) of the…