SHU atypique: RARE à l’écoute Podcasts
Si vous désirez vous informer et aller plus loin dans la connaissance de cette maladie rare, nous vous invitons à lire…
Si vous désirez vous informer et aller plus loin dans la connaissance de cette maladie rare, nous vous invitons à lire…
Iptacopan is a complement inhibitor that it is taken orally, twice daily. It works by inhibiting Complement Factor B (CFB ).…
Last summer, aHUS alliance’s Twitter Account featured the plight of a patient who, after a week in hospital, had been found…
There is so much chat these days about what things should be like after the pandemic. Though it does seem at…
Atipik Hemolitik Üremik Sendrom kısaca aHÜS, vücudumuzun bağışıklık sisteminin ana elemanlarından olan ana savunma sisteminin de ki bir parçanın regülasyon bozukluğu…
As the year ends we are still living with COVID. It seems like it is never ending. And it is and…
Rare Disease Day 2022: aHUS Alliance Global Action to mark the day with a patient-centered video that focuses on questions posed by those affected by the rare disease atypical HUS.
The second article in the series about the aHUS Diagnosis Process has been published on the website today. Research made possible…
Reaching out to Bridge Current Gaps As complement research has progressed and more is understood about thrombotic microangiopathy, it’s interesting that…