England recommends Ravulizumab for aHUS
Article No. 435 20 May 2021 There is a saying that "you can wait ages for a London bus but then…
Article No. 435 20 May 2021 There is a saying that "you can wait ages for a London bus but then…
Article No. 434 10 May 2021 The Scottish Medicines Consortium (SMC) has approved the use of Ravulizumab for treating aHUS in…
Article No. 433 9 May 2021 Each day there are tweets about aHUS on Twitter. Mostly clinicians informing clinicians about new…
Article No. 432 7 May 2021 In the past week or so, the possible trial of a new technology for treating…
Article 430 2 May 2021 OK so HUS is caused by e.coli and aHUS results from Complement dysregulation. Both are…
Article No. 429 23 April 2021 The aHUS alliance reputation for its 360 degree view of the rare disease aHUS continues…
Families with teenagers diagnosed with the life-threatening & rare disease atypical HUS deal with more than the usual host of everyday tangles regarding issues involving school, personal development, friendships, and activities.
Article No. 427 15 April 2021 It is not surprising that people are confused by rare disease definitions and terms, the…
Atypical HUS families may not live ‘charmed lives’ - but those affected by this rare disease can deliberately choose to create small ‘Charmed Moments’ each day. Given the uncertainties aHUS brings to our patients and their families, a look at cultivating actions and selecting choices to react to life’s circumstances and aHUS realities.