Rare Disease Day 2023- aHUS Community Project
On February 28, 2023, the world will join together to raise awareness for rare diseases like atypical HUS. Recognized annually on…
A ChatGPT about aHUS (and that Christmas question)
aHUS: Rare Blood Disorder This is a chat Global Action had with ChatGPT about aHUS. ChatGPT is a very new online…
HST TMA Is It aHUS ?
- An Hematopoietic Stem Cell Transplant (HSCT) is a way to treat some malignant and benign diseases. The transplant replaces disease…
Study of the aHUS Diagnosis Process- the “whys”, “whats” and “hows”
It is now over two years ago that Global Action began a major study of the aHUS Diagnosis Process, it is…
aHUS adverse events reporting
So adverse events are being reported. In USA over 4500 per year on average for eculizumab are reported to the FDA…
aHUS adverse events and patient reported outcomes
aHUS patients in clinical trials are monitored for adverse events and personal outcomes experience while on treatment. Adverse events have been…
Kamal is an aHUS Super Hero
Kamal Shah is a Director/Trustee of aHUS alliance Global Action. He first had aHUS over 25 years ago. It was triggered…
Recruiting to aHUS Trials is not easy
Hey Global aHUS alliance. Hi, but its aHUS alliance Global Action actually Whatever, let's settle on GA. Well we have been…
Atypical HUS Research: NOV 2022 New Additions
There are important publications about atypical HUS which people might miss given that key search terms may scan but miss the…
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