Is a patient organisation still needed for aHUS?
As another year turns in the aHUS world it is perhaps a time to reflect once more on the mission of…
Spotlight on aHUS Research: Dec 2024
It’s been a busy 4th quarter to round out 2024 for our aHUS Alliance Global Action team, and we’d like to…
It’s ChristmaHUS
Try the ChristmaHUS Quiz and when you finish join in with the aHUS Christmas Carol. Here’s a 20-question multiple-choice quiz on…
Página em Português da Comunidade de SHUa
Artigo Convidado: Pamela Notario Guest Article: by Pamela Notario (English Version below Portuguese Version) É com grande alegria que lançamos a…
Treatment Discontinuation- do doctors and patients think alike?
Recently a novel article about complement inhibitor treatment discontinuation was published. Novel because of the research method used to produce its…
aHUS etc dip into ASH 2024
Some of the latest aHUS, CM-TMA and TMA research being displayed at the American Society of Haematologists , ASH, conference 2024…
COMPLOSOME : SOMETHING ”NEW” ABOUT COMPLEMENT
Hi GA (Global Action) tell me something new about complement. Hi again. The Complosome. The “COM PLO SOAM” what is that?…
700 facts about aHUS?
This is the 700 th blog article about aHUS on this website. When thinking about how to mark this milestone a…
Numbers of aHUS patients
The aHUS patient community asked in its research agenda what are the numbers of aHUS patients. Global Action has written about…