The first ever aHUS research study patient cohort
The Global Action website has been featuring the pioneers and first events of aHUS history in its series Before aHUS Endeavours…
Atypical HUS Facts: 2024 – Sept – 2025
2024 – SEPT – 2025 Atypical HUS: Fact Sheets & Research Atypical Hemolytic Uremic Syndrome – a Rare Disease Information…
The 2024 Global aHUS Poll
The 2024 Global aHUS Poll was closed to further responses on 18th July. It had been open for 6 weeks and…
Social media and aHUS- Before aHUS endeavours fade
aHUS in the social media is now much more commonplace. In this latest article in the series “Before aHUS Endeavours Fade”…
Atypical HUS and PNH: better together?
The diseases PNH and aHUS, although different, share features in common. Both are very rare, both are the result of uncontrolled…
Trial Watch 20- ClinicalTrials.eu
The Global Action series “Trial Watch” has in the past covered several trials of treatments for aHUS patients and even some…
Is aHUS’ end nigh? It is now!
Nearly five years ago Global Action asked the question “ Is aHUS’s end nigh ?” In a trilogy of articles. (…
COVID Infection and vaccination and aHUS.
It was anticipated at the beginning of the pandemic that COVID would be a trigger of aHUS. Global Action postulated it…
aHUS awareness day and aHUS alliance Global Action
Introduction Atypical Hemolytic Uremic Syndrome (aHUS) is a rare, life-threatening disease that remains largely unfamiliar to the general public and even…