Is incidence of aHUS really “2 per million”?
I know it should not matter so much but whenever I see incidence and prevalence figures for aHUS in articles etc,…
I know it should not matter so much but whenever I see incidence and prevalence figures for aHUS in articles etc,…
Two updates on the Global aHUS Community Advisory Board. There is some information about the inaugural set of CAB / PHARMA…
Another trial of a complement inhibitor for aHUS treatment has been announced , it is for something currently called NM8074. Full…
This time last year a couple of dozen people with an interest in global aHUS advocacy were discussing and deciding on…
Sometimes it can be confusing being an aHUS patient. Even to knowing whether you are really an aHUS patient. Even if…
We’re pleased to announce that our latest edition of The aHUS Global Advocate newsletter has been released (Vol 6, Jan 2023)…
Sometimes there are fascinating articles related to atypical HUS which people might miss, and it’s then that it’s particularly helpful to…
As advocates for the rare disease atypical haemolytic uraemic syndrome (atypical HUS), there’s only one group of patients and caregivers whose…
Listening to some aHUS people on social media there is a sense that all are not satisfied with what is happening…