4th Edition of Indian Dialysis Olympiad held in New Delhi, India
Who said dialysis patients cannot play a sport? Given good quality dialysis, dialysis patients can do everything that people with healthy…
What’s New in aHUS Research – April 2023
It’s exciting to report that in the first months of 2023 there’s been a raft of new publications which are important…
The ethics of aHUS patient involvement.
Over the past 10 years the movement of involvement of patients in the development of medicines, their regulation and use has…
Iceland and aHUS
Nearly 400,000 people live in Iceland. At normal prevalence levels there should be two aHUS patients. There are at least three…
Nephmadness and aHUS
In March each year the nephrology community, supported by the American Journal of Kidney Disease, engages in an educational initiative called…
TURKEY: Association of the Fight against PNH and aHUS Diseases
We’re pleased to feature the outstanding work of the Turkish PNH & aHUS advocacy group PNH VE AHÜS İLE MÜCADELE Derneği. …
aHUS meningococcal infection – vigilance essential
All aHUS patients know that when on complement inhibitor treatment they are at risk of meningococcal infection. Do they? Of course,…
RDD23 VIDEO – RESULTS REPORT
WWW.AHUSALLIANCEGLOBALACTION.ORG 18 March 2023 aHUS PATIENTS' VIEWS ON THE ATTRIBUTION OF ADVERSE EVENTS /SIDE EFFECTS EXPERIENCED DUE TO EITHER THEIR PRIMARY…
Baltimore -aHUS First Since COVID
Zoom has helped with keeping aHUS advocacy going during the restrictions resulting from the COVID pandemic. Starting a zoom meeting always…
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