The aHUS Global Advocate Newsletter: 7th Edition
Written by an international team of aHUS patients and caregivers, the newsletter is an objective look at information and topics important…
Silver Lining: from aHUS Diagnosis to Dialysis Centre Entrepreneur
We’re excited to announce the release of this new book: Silver Lining: Overcoming Adversity to Build NephroPlus- India’s Largest Dialysis Provider …
Global aHUS at the Baltimore Conference
Global Action will be attending the Foundation’s Baltimore aHUS patients conference from the 28th to the 30th April. Here you will…
4th Edition of Indian Dialysis Olympiad held in New Delhi, India
Who said dialysis patients cannot play a sport? Given good quality dialysis, dialysis patients can do everything that people with healthy…
What’s New in aHUS Research – April 2023
It’s exciting to report that in the first months of 2023 there’s been a raft of new publications which are important…
The ethics of aHUS patient involvement.
Over the past 10 years the movement of involvement of patients in the development of medicines, their regulation and use has…
Iceland and aHUS
Nearly 400,000 people live in Iceland. At normal prevalence levels there should be two aHUS patients. There are at least three…
Nephmadness and aHUS
In March each year the nephrology community, supported by the American Journal of Kidney Disease, engages in an educational initiative called…
TURKEY: Association of the Fight against PNH and aHUS Diseases
We’re pleased to feature the outstanding work of the Turkish PNH & aHUS advocacy group PNH VE AHÜS İLE MÜCADELE Derneği. …
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