aHUS Trials Watch 19- Iptacopan
FDA has approved the use of Iptacopan, brand name Fabhalta, for PNH. Two trials demonstrated that this Factor B complement inhibitor…
FDA has approved the use of Iptacopan, brand name Fabhalta, for PNH. Two trials demonstrated that this Factor B complement inhibitor…
Genetic testing again a topic but this time it is of the patient; and is important for prognosis as well as…
Affordable treatment is a big issue for the majority of the world’s aHUS patients. Many live in countries that cannot afford…
To the best of Global Action’s knowledge there has not been a trial of subcutaneous Ravulizumab for use in the treatment…
aHUS patients are likely to have personal preferences for a treatment and as more options become available a personalised approach for…
Complement Inhibitor users are the group at most risk of meningococcal infection according to the Centre for Disease Control in the…
An accurate and rapid aHUS Diagnosis is essential to the best of aHUS patients health outcome. Our expert gave a response…
The series about the aHUS Research Agenda continues with second topic about familial genetic testing. When it comes to genetic testing…
What image comes to your mind when you hear the words ‘dialysis patient’? Most likely it’s not what you’ll see and…