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Sleep Disturbances and Chronic Kidney Disease

Many people with chronic kidney disease experience sleep disturbances, apparently affecting patients of all ages and many clinical subtypes. Here we present a curated list of information about sleep disorders and kidney disease, providing excerpts to provide an overview of how sleep disorders may have potential to impact atypical HUS patients of various ages and with varied health histories.

Mental health aHUS Day video- insights

The video for aHUS awareness day 2024 was about mental health and having aHUS. Global Action has looked again at it to see what important insights it might reveal. Participant…

Complement inhibitor users it’s World Meningitis Day

It is important that those using complement inhibitors remain alert to meningococcal infection a life threatening side effect of their use. In the USA around 5 users of complement inhibitors…

Mental Wellness: Insights & Resources

Mental Health: Types of Therapy | Ways to Nurture Mental Wellness | Mental Health Toolkit & Resources It’s a casual question people ask all the time, “How’s it going?”…

Kamal is an aHUS Super Hero

Kamal Shah is a Director/Trustee of aHUS alliance Global Action. He first had aHUS over 25 years ago. It was triggered by vaccinations needed to go to the USA to…

Side effects of ravulizimab between infusions

Ravulizumab is more widely used these days, particularly in the PNH community. Apart from the longer infusion intervals PNH patients benefit from higher dose levels that stop breakthrough haemolysis which,…

Long term aHUS effects

Long term aHUS disease, diagnosis and treatment legacies on both physical and mental health have featured in two aHUS Patient Research Agenda topics. The damage to the body during an…

LONG aHUS

aHUS alliance Global Action has previously brought up the concept of "Long aHUS " in its articles during the COVID pandemic. An enormous amount of publicity has been given to…