Skin & Atypical HUS: Thrombotic Microangiopathy in aHUS
Skin involvement and thrombotic microangipathy: a consideration for atypical HUS patient care.
Skin involvement and thrombotic microangipathy: a consideration for atypical HUS patient care.
As scientific discoveries advance, knowledge gaps slowly get smaller as well. This is true for any medical condition, but especially important for rare diseases like aHUS (atypical hemolytic uremic syndrome).…
Although people’s experiences differ both treatment and long term effects of aHUS can be detected by patients. Patients have asked : Can the side effects of treatment using a complement…
Jump to Section: About aHUS | Special Events | Clinical Information | Networks and Support | Patient Materials & Resources |aHUS Global Advocate: NEWSLETTER |aHUS alliance Global Action | aHUS…
All aHUS patients know that when on complement inhibitor treatment they are at risk of meningococcal infection. Do they? Of course, they are told about it before they get treatment.…
Jump to Section: About aHUS | Special Events | Clinical Information | Networks and Support | Patient Materials (to Print & Share) |aHUS Global Advocate: NEWSLETTER |aHUS alliance Global Action…
Listening to some aHUS people on social media there is a sense that all are not satisfied with what is happening to them healthwise . This is what underpins two…
On February 28, 2023, the world will join together to raise awareness for rare diseases like atypical HUS. Recognized annually on the last day of February, Rare Disease Day encourages…