aHUS Press Kit

Atypical HUS:  PRESS KIT  aHUS Info & Resources Patients sharing their rare disease journey help bring new levels of understanding to researchers, industry, and the general public.  Whether you’re living…

Continue Reading aHUS Press Kit

aHUS Alliance – Press Kit

  Patients sharing their rare disease journey help bring new levels of understanding to researchers, industry, and the general public.  Whether you’re living with atypical HUS or a member of…

Continue Reading aHUS Alliance – Press Kit

aHUS Press Kit

  Atypical HUS:  PRESS KIT  aHUS Info & Resources Patients sharing their rare disease journey help bring new levels of understanding to researchers, industry, and the general public.  Whether you’re…

Continue Reading aHUS Press Kit

aHUS Project for 2022 Rare Disease Day

Rare Disease Day 2022: aHUS Alliance Global Action to mark the day with a patient-centered video that focuses on questions posed by those affected by the rare disease atypical HUS.

Continue Reading aHUS Project for 2022 Rare Disease Day

24 Sept 2021 – aHUS Awareness Day

The 7th annual aHUS Awareness Day will be marked on 24 September 2021. Created by the aHUS Alliance in 2015 to raise awareness about this life-threatening rare disease, the theme for this year’s aHUS Day is ‘United in Advocacy’. Details the 2021 global campaign to raising awareness of atypical HUS.

Continue Reading 24 Sept 2021 – aHUS Awareness Day

2020 aHUS Awareness Day

Article No. 361 24 July 2020   The world’s 6th annual aHUS Awareness Day, to be held on Thursday 24 September 2020, was created by the aHUS Alliance to share…

Continue Reading 2020 aHUS Awareness Day

Info Centre

Welcome to the aHUS Alliance Global Action’s Information Centre! Containing a stock of information resources about atypical Haemolytic Uraemic Syndrome (aHUS)  gathered from around the world, this ‘virtual library’ is…

Continue Reading Info Centre