Atypical HUS: Not Like the Others

Patient involvement needs to be integrated across all areas of research and at early stages of planning clinical trials. When patient engagement is in the atypical HUS arena, what considerations make outreach a bit different for advocacy regarding this ultra rare disease?

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Atypical HUS – RESOURCES

Atypical HUS - RESOURCES About aHUS - General Info Info Centre  Know aHUS:  Know US aHUS PRESS KIT Image Gallery:  Atypical HUS info & advocacy Atypical HUS 1.0 - to…

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Perspectives in Atypical HUS

The aHUS Alliance presents issues and information from varied perspectives within the atypical HUS arena. Amplifying the patient voice in over 30 countries, we present this series of original content on topics related to the rare disease atypical HUS with articles focused on key interests of patients, caregivers, physicians, researchers and other stakeholders,

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Atypical HUS Therapeutic Drug Pipeline in 2018

Drug Discovery and Market Factors within the Atypical HUS Arena E:  info@aHUSallianceAction.org   The aHUS Alliance is an international group of people and organizations interested in the advancement of research…

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Atypical HUS Therapeutic Drug Pipeline in 2018

Drug Discovery and Market Factors within the Atypical HUS Arena       E:  info@aHUSallianceAction.org              Atypical HUS - Global Rare Disease Advocacy   The aHUS Alliance is an…

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