2016 aHUS Global Poll – 233 participants from 23 nations
Click Here to read more about the 2016 aHUS Global Poll
RareConnect in partnership with the aHUS Alliance organised a webinar on the 21st of June at 11 a.m. EDT where Dr. Christoph Licht analysed the results of this survey.
2016 aHUS Global Poll: Survey Questions
Europe patient voice
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2014 aHUS Global Poll
In partnership with RareConnect, aHUS patient organizations in multiple nations launched a 2014 global poll of aHUS patients and caregivers. Open from 17 February to 7 March 2014, the survey provided information and insights from 214 respondents, replying in 6 different languages across 17 nations.
Click here to view the results of the survey.
Click here to view an infographic summarizing the results.
2014 aHUS Survey Results – Commentaries
Click here to view the slide deck used by Prof. Tim Goodship in the webinar above.
Click here to view a commentary on the survey results by Len Woodward, Secretary, aHUS UK.
Click here to view a blog on the survey results by Linda Burke, member of the aHUS Alliance.