Some time back aHUS Global Action gave a presentation to an aHUS patient conference and included the following slide about its website.
The intent was to demonstrate that its website had a 360 degree view of aHUS.
Whilst not everything written is for everyone there should be something for everyone given the potentially diverse spectrum of aHUS patients and its community.
There is no other website like it.
Take a look at the list.
The audience at the conference was challenged to mention something that the Global Action website had not addressed with a promise that if there was something an article would be written about it.
It is now more than eight years since the website was launched. There are few aHUS patient websites which continually write new content
There were no suggestions during the presentation or after but the challenge is still open.
Article No. 668
