Where can you get aHUS news that’s independent, objective, and focused on what’s important to the atypical HUS community? Here! We’re pleased to announce that our latest edition of The aHUS Global Advocate newsletter has been released (Vol 9, March 2024) – and it’s great as a trusted source of atypical HUS ‘News You Can Use’ for families and advocates, as well as stakeholders interested in aHUS treatment and research.
Don’t miss this newsletter’s highlights which include: an interview with Dr Victoria Brocklebank on advancing aHUS knowledge, a historical look at the achievements of Dr Lenny Bell in getting eculizumab to treatment markets, findings from the US Food & Drug Administration’s ‘listening session’ for aHUS advocates, our 2024 Feb Rare Disease Day community project, new research highlights, and much more.
Written by an international team of aHUS patients and caregivers, the newsletter is an objective look at information and topics important to aHUS families. The aHUS Global Advocate provides a snapshot of updates on research and high interest topics that are specific to atypical HUS.Just finding out about this way to keep connected with global aHUS advocacy, and want to get future newsletters? Sign up, it’s free (and the aHUS Alliance Global Action team keeps our mailing list private).
Learn more about The aHUS Global Advocate with the links below, Click Here to Subscribe
aHUS NEWSLETTER (Intro & Subscription Info)
aHUS Alliance Launches its Newsletter
We’ll send you Volume 9 of the aHUS Global Advocate
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aHUS Global Advocate Newsletters: FMI & Archived Volumes
