PATIENT ASSOCIATIONS
Other Connections for aHUS Advocacy
RareConnect – aHUS Global Community, discussion and content available in 8 languages. Patient & Caregiver posts with information and support, created by EURORDIS. https://www.rareconnect.org/en/community/atypical-hemolytic-uremic-syn
aHUS Alliance – An umbrella group of aHUS patient organizations around the world. Highlights of aHUS advocacy, information, and efforts appear on:
Twitter:@aHUSallianceAct, aHUS Awareness Day @aHUS24Sept
Facebook: @aHUSalliance
QUESTIONS? Contact Us Email: info@aHUSallianceaction.org