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A Global AHUS Patient Organisation Connecting, Informing And Collaborating To Provide Awareness, Help, Understanding And Support For AHUS Patient Advocacy Everywhere.
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WARNING: Serious meningococcal infection can happen in patients treated with complement inhibitors. Follow precautions and be vigilant. Keep up to date with vaccines and boosters. Be vigilant and act quickly on possible symptoms.
aHUS Awareness Day & Rare Disease Day
Articles: News & Views
A patients perspective of aHUS name change
For the past nine years Global Action has been at the forefront of featuring the…
Global Poll for aHUS - Progress Report
Last Summer nearly three hundred aHUS people from around the world participated in the 2024…
Real world data on aHUS treatment discontinuation
A few days ago an article appeared in The Lancet which claims to be the…
Our Mission
Statement
The aHUS alliance, through the collaboration of its affiliates will promote global awareness of aHUS, will work with international aHUS researchers and, by supporting newly emerging national aHUS patient groups, will bring relief and support to those affected by aHUS to save, and improve the quality of, more lives.
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It's not how much we give but how much love we put into giving
- Mother Theresa

Support aHUS Alliance Action
You can support this trust of only volunteers in our quest to support aHUS patients and their family worldwide by making a donation through Paypal
Testimonial
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Isabella
Financial Adviser
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Alexander
Health Activist
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Olivia
Teacher
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