The most important conference being held this year to feature aHUS, is the long awaited ISN Complement Mediated Renal Disease meeting in Bergamo, Italy.
It begins in just over three weeks on 23 to 25 June. Global Action has already set out the three day programme in a previous blog (see HERE).
ISN Communication Team has released videos of the three co-hosts of the meeting Professors Giuseppe Remuzzi, Raja Ramachandran and Marina Norris. Giuseppe, Raja and Marina preview the topics that will be covered at the meeting.
These videos can be viewed on the ISN website at this link HERE.
The author is attending the meeting and will give a brief talk about aHUS patient advocacy and what matters to aHUS patients when it comes to research. It is also hoped to report on each day’s events.
Article No. 517
