3
A Global AHUS Patient Organisation Connecting, Informing And Collaborating To Provide Awareness, Help, Understanding And Support For AHUS Patient Advocacy Everywhere.
Slide
WARNING: Serious meningococcal infection can happen in patients treated with complement inhibitors. Follow precautions and be vigilant. Keep up to date with vaccines and boosters. Be vigilant and act quickly on possible symptoms.
aHUS Awareness Day & Rare Disease Day
Articles: News & Views
Discontinuation - no longer needing complement inhibition
Complement inhibition treatment discontinuation is a topic that Global Action has led on in the…
RDD25: MORE THAN YOU CAN IMAGINE!
It will be Rare Disease Day on 28th February 2025. A day to raise awareness…
Is a patient organisation still needed for aHUS?
As another year turns in the aHUS world it is perhaps a time to reflect…
Our Mission
Statement
The aHUS alliance, through the collaboration of its affiliates will promote global awareness of aHUS, will work with international aHUS researchers and, by supporting newly emerging national aHUS patient groups, will bring relief and support to those affected by aHUS to save, and improve the quality of, more lives.
The shortcode is missing a valid Donation Form ID attribute.
The shortcode is missing a valid Donation Form ID attribute.
The shortcode is missing a valid Donation Form ID attribute.
It's not how much we give but how much love we put into giving
- Mother Theresa
Support aHUS Alliance Action
You can support this trust of only volunteers in our quest to support aHUS patients and their family worldwide by making a donation through Paypal
Testimonial
Click edit button to change this text. Lorem ipsum dolor sit amet, consectetur adipiscing elit. Ut elit tellus, luctus nec ullamcorper mattis, pulvinar dapibus leo.
Isabella
Financial Adviser
Click edit button to change this text. Lorem ipsum dolor sit amet, consectetur adipiscing elit. Ut elit tellus, luctus nec ullamcorper mattis, pulvinar dapibus leo.
Alexander
Health Activist
Click edit button to change this text. Lorem ipsum dolor sit amet, consectetur adipiscing elit. Ut elit tellus, luctus nec ullamcorper mattis, pulvinar dapibus leo.
Olivia
Teacher